Epilepsy is one of the most misunderstood neurological conditions. While awareness has improved over the years, many people still have a limited or generalized understanding of what it actually is. Often, when people hear the word “epilepsy,” they immediately think of a person collapsing to the ground and convulsing. But in reality, epilepsy is much more complex than that.

The Many Forms of Epilepsy

Epilepsy is not a one-size-fits-all condition. There are over 40 different types of seizures, and not all of them involve convulsions. Some people experience absence seizures, where they simply blank out for a few seconds, while others may have focal seizures, where only part of the brain is affected, causing unusual movements or sensations. Some types of epilepsy are well-controlled with medication, while others are resistant to treatment.

Despite the diversity of epilepsy, public understanding often remains limited to what is shown in movies or television, which tend to portray the most dramatic seizures. This can be frustrating for those who live with less visible forms of epilepsy, as their struggles are often overlooked or misunderstood.

How Awareness Has Changed

When I was younger, epilepsy was barely mentioned in public discussions, on TV, or in advertising. I remember feeling lost and alone at 11 years old, struggling with something that few people seemed to understand. There was little awareness, and even less support.

Thankfully, things have changed. There are now epilepsy awareness campaigns, medical advancements, and social media communities that help people connect and share their experiences. More schools and workplaces have policies in place to support people with epilepsy, and public figures have started to speak out about their own experiences with the condition.

However, while awareness has improved, it is still not where it should be. Many people still do not fully understand the impact epilepsy has on daily life—how unpredictable it can be, the side effects of medication, the mental health struggles that often come with it, and the social stigma that still lingers.

Why We Need More Awareness

There is still work to be done. We need to continue educating people about the different types of epilepsy, how to properly respond to a seizure, and how to support those living with the condition. Schools, workplaces, and public spaces should be better equipped to accommodate people with epilepsy, making them feel safe and included.

No one should feel alone because of a medical condition. By continuing to raise awareness, we can create a world where people with epilepsy are not just understood but fully supported in their everyday lives.

If you or someone you know has epilepsy, remember that you are not alone. There is a growing community of people who understand, who are working to spread awareness, and who are fighting for better support and representation. The journey isn’t over, but we’ve come a long way—and we’ll keep going.