Dear Readers,

As I begin this letter to you, I’m compelled to share a personal aspect of my life: my journey with myoclonic epilepsy. This morning, much like many others, I woke up feeling the familiar heaviness of exhaustion and the unsettling sensation of shakiness coursing through my body. It’s a shared experience that some of you might resonate with, and one that often demands a delicate balance of resilience and self-care.

Living with myoclonic epilepsy has taught me to navigate through days that can be unpredictable and challenging. It means facing moments like today, when fatigue and tremors threaten to disrupt the rhythm of my day. Yet, amidst the struggle, I’ve discovered a coping mechanism that I find incredibly helpful: embracing calm.

When faced with the uncertainty of my condition, I’ve learned that stressing over it only exacerbates the situation. Instead, I’ve found solace in the simplicity of being calm, of allowing myself to go with the flow and not letting the challenges take over. It’s not always easy – in fact, it can be incredibly frustrating – but I’ve come to realise that maintaining a sense of tranquility is essential for managing myoclonic epilepsy.

One of the most effective ways I’ve found to cultivate this calmness is through music. There’s something truly magical about closing your eyes, immersing yourself in the melody, and allowing the soothing sounds to wash over you. In those moments, it feels as though there’s no one else in the world, just you and the music, united in a harmonious embrace.

So, to anyone who may be experiencing similar sensations today, I encourage you to embrace calmness as a guiding principle. Take a moment to pause, to breathe deeply, and to surrender to the present moment. Allow yourself to be enveloped by the beauty of music, letting it serve as a source of comfort and solace in times of need.

And to those who may not be familiar with myoclonic epilepsy but are here to offer support and understanding, I extend my deepest gratitude. Your willingness to listen, to empathize, and to stand in solidarity with those facing challenges is truly commendable, and I thank you from the bottom of my heart.

Together, let’s continue to navigate the ups and downs of life with grace, compassion, and resilience. Let’s cultivate a sense of calmness that serves as a beacon of light in even the darkest of moments.

With heartfelt sincerity,